Mom Has Dementia; How Do I Keep Her Safe?

Dementia Safety Precautions

“Mary” posted a question to an on-line caregiver-group that I want to share with all of you:

“How do I keep my parent, who’s suffering from dementia, safe while I’m at work?” – Mary

Here are some suggestions from the Alzheimer’s Association brochure, “Staying Safe”:

  • Be sure to have working fire extinguishers, smoke alarms and carbon monoxide detectors in the house.  Test them regularly.
  • If you are out of the home during the day, use appliances with an auto shut-off feature, such as coffee pots.
  • Install a hidden gas valve or circuit breaker on the stove so your loved one can’t turn it on.  You can also consider removing the knobs when you leave the house.
  • Store grills, lawn mowers, power tools, knives, firearms and cleaning products in a secure (that means locked) place.
  • Discard toxic plants and decorative fruit that may be mistaken for real food.
  • Store medications, vitamins, and other dietary supplements in a locked cupboard.  Remove sugar substitutes and seasonings from kitchen tables and counters.
  • Supervise the use of tobacco and alcohol.  Both may interact dangerously with your patient’s medications.

thumbs upDementia & Wandering

More than 60 percent of dementia patients will wander.  The danger is that they can become lost and die before they’re found.  The Alzheimer’s Association recommends the use of their MedicAlert-Alzheimer’s Association Safe Return program.  There are other, similar programs available, which you can find on-line.

Even if your dementia patient is equipped with one of these tracking devices, prevention is still the best plan:

  • Short term memory loss can cause anxiety and confusion in a place that’s large or contains lots of people, such as the market, a theater, a restaurant, a shopping mall or sports venue.  That confusion can cause patients to wander off in search of something that will quiet their sense of panic.  The best strategy is to keep away from places that will induce this behavior.
  • Be on alert for wandering if your loved one wants to “go to work” or “go home,” if he or she is restless or has a hard time locating familiar place in the home such as the bedroom or bathroom.
  • Other ways to prevent wandering include placing deadbolt locks on exterior doors either high or low, and controlling access to the car keys.

One of the best things you can do when your patients are showing signs of anxiety which may lead to wandering is to give them plenty of assurance that you will not leave them alone.  Try distracting them by giving them repetitive tasks, like folding laundry or helping prepare dinner.

Keeping your dementia patient safe is really a matter of being aware of their reactions and anticipating problems before they actually occur.

Blessings, Joanne

*photo - freedigitalphotos.net

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Renewing An Aging Adult’s Drivers License

IIHS logoThe Senior List published an article recently entitled “Taking The Car Keys From Mom Or Dad“.  It provided some great tips on talking to aging parents about their driving.  We recognize this is a very important (and difficult) conversation to have.  We’d also like to invite you to add your tips and/or stories to the comments section in that article (or this one) to help others that may be seeking advice on the subject.  We found a some nice statistics to share about licensing (renewal) provisions for older drivers.  This illustration below is provided by The Insurance Institute for Highway Safety, a non-profit “dedicated to reducing the losses deaths, injuries and property damage from crashes on the nation’s roads”.  This chart is updated (as of 2012) and provides a state by state look at what’s involved in renewing an aging person’s drivers license.

Drivers License Renewals for Seniors (by state):

licensing renewal options for older drivers

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Dementia Patients And Wandering

caregiver holding handsAccording to the Alzheimer’s Association, six of every 10 dementia patients will wander.  When they do, their lives are at risk.   And yet, how many of you caregivers of (elderly) dementia patients are prepared to deal with the reality of this dangerous potential?

Too often, I hear a statement like “Well dad hasn’t tried to wander off yet, so we don’t need to worry about that right now.”  The problem is that there’s no way to know when dad will wander off.  It makes sense to be proactive to prevent wandering rather than wait for disaster to strike.

A recent story in the Los Angeles Times reported a 92-year-old dementia patient whose family was in denial about the possibility of him wandering.  When he did, he was lost for nearly 24 hours.  The story had a happy ending when he was found, tired, hungry and dehydrated, but safe.  Sadly, not all of the stories end that way.

In this case, the family was convinced that even though their loved one was suffering from dementia, he wouldn’t wander.  They all went to dinner in a large restaurant and let him go to the restroom alone.  He didn’t come back. “He kind of has dementia,” said one of his relatives.  “He might not have remembered that he was with us or where he was.”

Oh brother.  Without dealing with the denial of reality (in those statements), let’s just focus on the fact that as a person with dementia, he has significant short-term memory loss.  He can be easily confused in surroundings where there are large groups of unfamiliar people.  Obviously he could’nt remember he was with family in the large and unfamiliar restaurant.  And likewise, he didn’t know where he was… so he went in search of “home.”

“He kind of has dementia” – (Family member of wandering dementia patient)

Don’t wait until something like this happens to your loved one.  Take action now.

The Alzheimer’s Association (1-800-272-3900) has some terrific information to help you make sure your loved one will stay safe.  In addition, there are now tracking devices, smartphones, dumb phones, and apps for seniors that can be tracked from your smart phone, tablet or computer.  Type “tracking devices for dementia patients” into your search engine and you’ll be amazed at the number of products that are available.

Blessings, Joanne

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Programs of All-Inclusive Care for the Elderly (PACE)

We all want the best care for our aging loved one, but getting that care can be frustrating. If you have an aging loved one, you know what it’s like to drive your loved one from appointment to appointment; to manage all of their medications; to deal with doctors who don’t talk to one another; and you struggle with leaving your loved one at home, alone and without the supervision, the company andthe  interaction they want (and need).

It doesn’t have to be this way. Thousands of families across America have found a different and better kind of care for their aging loved ones – PACE.  Programs of All-inclusive Care for the Elderly (PACE) provide comprehensive health services for individuals age 55 and over who are determined to be “nursing home eligible” by their state’s Medicaid program. The care model is centered around the belief that it is better for the well-being of seniors with chronic care needs and their families to be served in the community whenever possible.

What do we offer?
PACE services include primary and specialty medical care, medications and medical supplies; all emergency medical, surgical and hospital services; social services; therapies (occupational, physical, speech, recreation, etc.); day health center services; home care; transportation to and from the day center, medical appointments and PACE organized trips; minor modifications to the home to accommodate disabilities; and anything else the program determines is medically necessary to maximize a member’s health.

Who do we serve?
PACE programs enroll only the very frail–a patient population for whom prevention and health promotion makes a significant difference.  Most PACE members have multiple diagnoses, with an average of over 7 diagnoses per member. Among the most common are cardiac problems, diabetes, hypertension, and vascular disease.

How do we do it?
At the core of the PACE care model is the interdisciplinary team. This team is made up of doctors, nurses, therapists, pharmacists, social workers, caregiver aides, chaplains and others. Primary care providers and other caregivers are trained in working with seniors and are focused on treating the whole person. They work together with the participant and any appropriate family members to create an individualized care plan. PACE programs provide high levels of preventive services, such as frequent check-ups, exercise programs, dietary monitoring, programs to increase strength and balance, and more.

PACE programs organize their services in a “PACE Center”. These Centers have a Day Health Center, physician’ offices, nursing, social services and rehabilitation services, along with administrative staff, all in one site. Members attend centers from rarely to daily, depending on their care plans. Most members attend about 2 days per week.

Where do our participants live?
Participants may live in their own home or with a family member and receive in-home support from a PACE employed or contracted caregiver. Others live in some type of care facility such as an adult care home, assisted living facility or residential care facility.

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Caregiving – Keeping a Watchful Eye Out For Elder Abuse

Elder Abuse Watch:

An article appearing in today’s Oregonian prompted me to write a short post about elder abuse.  The article is titled “Pair plead guilty to identity theft“.  It’s a story about two would-be-caregivers that charged up a time share, a boat, and two vehicles on an unsuspecting 84 year old’s bank accounts (unauthorized, of course). The story is buried in the “Community New” section in a small column called In the Courts.  Though the column is small, the problem of elder abuse is a big one.  A clicked the tag “elder abuse” on Oregon Live (the online version of The Oregonian) and it showed 14 headlines — including the below…

“Forest Grove man gets 5 years probation for elder fraud”

“Forest Grove police seek suspect in elder abuse case”

“Family friend accused of stealing $83,000 from elderly Milwaukie man”

“Portland man accused of pocketing his elderly mother’s assets and fraudulently applying for Medicaid”

“Portland man accused of tapping 99-year-old grandmother’s ATM for more than $40,000″

And the list goes on… here’s a link to these elder abuse headlines (if you want to read on and raise your blood pressure).  Keep in mind, I only searched one “tag” in our local community here in the Portland, Oregon area.  It also goes without saying (although I’m saying it) that elder abuse is highly under reported, (as are all other forms of abuse).  Only 1 in 14 incidents come to the attention of authorities according to survey results published in The Gerontologist, (1998 28:51-57).  Does this scare you as much as it scares me?

The National Center on Elder Abuse cites a Wash. DC National Research Council Panel study that estimates “between 1 and 2 million Americans age 65 or older have been injured, exploited, or otherwise mistreated by someone on whom they depended for care or protection.  Definitions of “Elder Abuse” vary, but I found one I agree with on Medline Plus.  Medline Plus is the National Institutes of Health’s website for patients, families and friends.

Medline Plus defines Elder Abuse as follows:

“Elder abuse is doing something or failing to do something that results in harm to an elderly person  or puts a helpless older person at risk of harm.  This includes:  Physical, sexual and emotional abuse; Neglecting or deserting an older person you are responsible for; Taking or misusing an elderly person’s money or property”

So what can you do to make sure you’re loved one isn’t taken advantage of, or worse yet, abused?

  1. Make sure that there are multiple layers of trusted individuals communicating, and checking-in with your loved one often (family, friends, neighbors, and elderare professionals).
  2. Make sure caregivers have UP TO DATE criminal background checks documented, and ask to speak to references
  3. Make sure there are at least 2 trusted sources tracking “the money”.  There must be “checks and balances” with regard to finances for anyone… this is especially true for elderly individuals.  A conservator/guardian may be able to help manage the finances.

You’ll find a host of resources and links at Medline Plus. So I encourage you to bookmark the site (especially if you’re a caregiver, family member or eldercare professional).  Another great resource, as mentioned above, is the National Center on Elder Abuse (Administration on Aging).

*To browse local home care providers in your community, visit The Senior List Eldercare Directory.

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Is Mom Safe in the Hospital? Tips to Help Make Her Stay Mistake Free

So your Mom has to have surgery huh?  She will be admitted to the local hospital near her home.  The doctor tells her she will be in the hospital for two or three days.  He says her surgery is routine and that there is nothing to worry about.  Sounds like a plan… No worries right?  (Ya right…)

Hospitals are complicated places. Despite the best intentions, the finest equipment, and the most highly trained staff, mistakes happen. Sometimes they are insignificant – sometimes they have serious consequences. Here are some ways you can help ensure your Mom is safe.

Tips to make sure your trip to the hospital is mistake free:

1.Make sure every piece of data the hospital has about your Mom is accurate and up-to-date. This is especially true for information about her medicines. Read the papers they ask her to sign. Know what’s in them.

2. If she has an advance directive and a “Do not resuscitate” order from her physician, be sure they are available in her chart and posted prominently in her room.

3. Make sure the information on her armband is correct. Make sure there IS an armband.

4. Watch when people come to her room to do something, like draw blood. Do they wash their hands first? Do they identify themselves by name and what they do? Do they tell Mom that her doctor ordered whatever it is they are about to do? Do they positively identify her, by asking her name or birthday or something else unique? Do they check her armband? Do they explain what they are about to do? If they are bringing medicine, do they explain what it is and what it’s for? If she’s being taken to another place in the hospital, is there a formal handoff between the staff on her floor and the person transporting? Do they make sure Mom is the right person, and where she’s going? These things should be done every time, regardless of how well people appear to know your mother.

5. Be there with your Mom as much as you can. Meet her caregivers and get to know them. Be involved in her care. Help when you can, like at mealtimes: her caregivers will appreciate it. Ask questions, both for yourself and for your Mom. People who work in hospitals are smart, caring, and well-intentioned: they want the best for their patients. But they are also human, and humans make mistakes. Be Mom’s advocate. NEVER hesitate to question something.

Kirk Harney managed his parents’ lives for almost four years as they passed away from cancer, stroke, pneumonia and Alzheimer’s. He is passionate about helping other caregivers cope and maintain healthy family relationships. More information can be found at http://www.CareForElderlyParents.com

If you liked this article, also see:  Surviving a Parent’s Trip to the Hospital & Beyond: What to know before you go.

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NY State – A Model For Adult Day Health Care Programs

Adult Day Health Care: What Is It?

What do you know about Adult Day Health Care? Adult Day Health Care provides “clear coordination of services“, and allows individuals to remain at home, while enjoying healthcare-services AND socialization that they wouldn’t otherwise be exposed to.

Services include; Health Care Services, Nursing Monitoring, Health Care Management, Nutrition Management, Therapeutic Recreation, Social Work Services, and more.  We found a wonderful video highlighting a model Adult Day Health Care Program in New York State.  It is brought to you in part by the Adult Day Health Care Council, and it’s very well done.

Please pass this on to other caregivers, consumers, and providers that might need the awareness about this extremely valuable service for aging individuals.  If you’ve found great Day Health Programs in NY State or any state across the USA, Canada, or UK.  Please add them to The Senior List eldercare directory, and provide a rating and/or review so that others may benefit from your experience.

Enjoy the video- Please let us know what you think!

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Knowing the 10 Signs of Alzheimer’s Disease

The Alzheimer’s Association  is a wonderful organization with a mission statement that reads:  “To eliminate Alzheimer’s Disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.”  If you visit their website this month you’ll see a great resource that we feel is important to pass along.  They recent posted a great article entitled “Know the 10 Signs”.

10 major signs of Alzheimer’s Disease to be aware of:

1. Memory loss that disrupts daily life

2. Challenges in planning or solving problems

3. Difficulty completing familiar tasks at home, at work or at leisure

4. Confusion with time or place

5. Trouble understanding visual images and spatial relationships

6. New problems with words in speaking or writing

7. Misplacing things and losing the ability to retrace steps

8. Decreased or poor judgment

9. Withdrawal from work or social activities

10. Changes in mood and personality

If you or a loved one is experiencing any (or a combination) of the above 10 signs, please discuss this with a medical professional. So often these issues are masked because folks may be unaware, or embarrased. It’s always best to get in front of issues surrounding Alzheimer’s Disease and other health issues so that proper health management techniques can be employed early on!

If you liked this post, visit another entitled Big Gains Seen In Recent Alzheimer’s Research (with a great video about what Alzheimer’s Disease really is).

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What Is In-Home Care?

In Home Care is designed to support those who do not desire or need to leave their homes, but do require assistance with one or more of their daily activities. Care in the home can take on a variety of shapes and sizes and can incorporate family, friends, and professional assistance. I think most people, given a choice, would prefer to receive assistance from someone they know, family or friends.

There are certainly situations, however, that family or friends providing care is not appropriate, or does not appeal to everyone, including the family and friends. If professional support needs to be hired, here are a few considerations and questions to ask the agencies you are interviewing.

  1. Most In-Home Care agencies have hourly minimums, usually 2-4 hrs. If a shift does not meet these minimums, the client may still have to pay for the full shift.
  2. Make sure the agency you are considering is licensed, and caregivers are bonded and insured.
  3. What kind of training and orientation do the staff participate in?
  4. Is there a nurse to oversee caregivers and provide training?
  5. What is the process if a caregiver is sick or does not show up for a shift?
  6. What are the fees? Do you pay less for longer shifts? Does the agency bill monthly or weekly? Do they provide transportation to doctor appointments, grocery store, etc…?
  7. Does the agency have access to other resources in the community should you need them?
  8. Check inspection results at medicare.gov.
  9. Ask to see references and customer testimonials. You can review online eldercare ratings and reviews right here on The Senior List.com.

What is the advantage of hiring my own private caregiver?

  • generally less expensive than working with an agency
  • caregiver is your employee, they work for you.
  • may be able to exchange care services for room and board, this works well for students

What is the advantage of hiring an agency?

  • agency pays taxes, insurance, etc… No liability on your part, less risk
  • shift will always be covered
  • agencies are regulated and must pass inspections to operate

What type of Assistance can a caregiver provide?

  • Bathing/ Grooming
  • Light Cleaning
  • Shopping
  • Laundry
  • Meal Preparation
  • Toileting
  • Dressing
  • Mobility
  • Night care

How Much Does In-Home Care Cost? I have seen quite a range for costs, anywhere from $12-$22 per hour, depending on geography and duties of the caregiver. If the caregiver is a CNA, the cost will typically increase due to training that the individual has received.  Who Pays for In-Home Care?

  • Private Pay (you)
  • Long Term Care Insurance- check your policy for restrictions and make sure agency is able to accept payment from Insurance provider
  • Some Health Insurances- check your policy
  • Medicaid- offers limited in-home care programs for those who qualify
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Surviving a Parent’s Trip to the Hospital & Beyond: What to know before you go

Let’s say that you find your mom on the floor in her bathroom at home (yes a nightmare, but it does happen). She complains of hip pain and has been there for a few hours. You make the call and a few hours later she has been admitted to the hospital with a hip fracture. Now what?

Insurance: If your loved one has Medicare or a HMO that manages medicare benefits, the hospital stay is mostly covered. Medicare recipients will pay a $992 deductible for 2007 for hospital stays of 1-60 days. If a HMO is involved, check with the benefits administrator for specific deductibles or co-pays.

Legal Documents: If you haven’t done it already, now would be a great time to have legal documents prepared for health care decisions. The most widely used form is called the Advance Directive for Health Care. This form allows your loved one to appoint someone to make decisions about health care if they are unable to do so, as well, this form also addresses end-of-life decision making. While you are helping your loved one with this document, fill one out for yourself!

Your mom has been in the hospital for two days now, and the discharge planner is telling you that she needs to leave the hospital in two days! To top if off, you have been presented with a list of in-patient rehab centers for discharge and you are expected to pick one!

Skilled Nursing Facilities (SNF): Medicare and HMO’s will cover rehab centers- with a catch. Medicare recipients must have a three night hospital stay and receive a doctor’s order to receive ‘skilled’ care in order to qualify for admission to rehab. The doctor will make a decision based on several aspects of a patient’s rehab potential. HMO benefits vary greatly, check with the benefits administrator for specific requirements. .

Medicare has a great website for users to compare rehab centers based on their yearly state inspection results and other quality indicators, www.medicare.gov/NHcompare. You will also find helpful checklists to assist in your search. Select a few; go for a tour. Talk to health care professionals who can share their experiences with these facilities.

The 100-day myth: Many families leave the hospital believing their loved one will be able to stay in the rehab center for a full 100 days. It is a rare case that a resident uses their full 100 days of Medicare during a rehab stay. Medicare does not cover long-term care it is simply an insurance benefit. Medicare will cover a rehab center as long as your loved one continues to benefit from the skilled services they are receiving. Medicare does not have representatives that make this decision, instead, the decision to continue with rehab on a day to day basis is decided by the interdisciplinary team at the rehab center working with your loved one.

In the case of HMO recipients, the HMO does employ case managers who keep in close contact with the rehab centers and decide when a resident is no longer eligible for skilled benefits. In either case, once it has been determined that your loved one no longer qualifies for skilled benefits, you will be presented with a Notice of Medicare Provider Non-Coverage (aka, a denial letter). By law, Medicare beneficiaries must have 72 hours notice of non coverage; HMO’s vary between 48-72 hours depending on the HMO.

Appeals: Once your loved one has been presented with a denial letter, several options are available. If you do not agree with the non-coverage decision, you can appeal it. You will find appeal information within the Non-Coverage letter, specific to the Medicare Insurance provider. If you do agree with the non-coverage decision, it is time to make decisions about the next move for your loved one. Hopefully, you and your loved one have been discussing the plans to return home after the rehab stay. The rehab social worker can help you arrange for equipment and services to ease the transition of returning home. If returning home is not an option for your loved one, you now face a myriad of options for community based care.

Amie Clark, Co-founder of The Senior List & Founder of The Senior Resource Network

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