Regulation of Senior Referral and Placement Agencies is Long Overdue

Let’s begin with a common scenario: Your father has had a stroke or is exhibiting signs of advanced dementia. He may wish to remain in his home, but you know that he is not safe and remaining at home alone is no longer an option.

As is human nature, most of us put off looking at senior housing for a loved one until a crisis (or near-crisis) arises.  The enormous task of selecting the most suitable, affordable and best senior care facility seems mind-bogglingly complex. Many people look for help, in the hours of frantic need, with one of the many senior care referral and placement agencies found online.

Most referral and placement websites declare that the agency can – at no charge to you, the client – recommend appropriate facilities.  Based on the information you provide of your loved one’s needs, you will receive a list of potential matches.

Whether you go with a nationwide company, or a much smaller, locally-based business where the agents focus on local facilities only, you’re probably expecting that you – and especially your loved one – will be treated with respect, empathy, and honesty.

Why Referral and Placement Agencies Might Not Be All That They Seem

There are two reasons why your trust could be misplaced. The first is that this sector of the senior care industry attracts both those who sincerely wish to assist potential residents to find a good home, and those others who regard senior placement as a way to earn a lot of quick money with very little work. The latter group are influenced by little, if any, regard for the welfare of their clients.

The second reason to be wary is that there has been, practically speaking, no regulation of these referral and placement agencies, either on a federal or a state level.

The Negative Results of a Lack of Legislation

Liz Fischer, a Certified Senior Adviser in Portland, OR, and president of the Oregon Senior Referral Agency Association, when asked about the results of this lack of regulation stated this:

We’re the only resource in the continuum of senior care that has no regulation,” adding that “there is currently no place to file a complaint about a referral agency and no penalties for causing harm to seniors. We don’t currently have background checks, so anybody could do this job and it could cause harm to seniors.

While obtaining information for our Best Assisted Living List, we asked Candiece Milford, Managing Director of Marketing for Rhoda Goldman Plaza, a senior care facility in San Francisco, about her views on the need for such legislation, to which she replied:

I only work with one [referral agency], who is a local couple who hand-holds clients through their process, even if they are planning ahead. To me, that is the ethical approach and does not immediately reap a fee, but establishes a trusting relationship, which is paramount . . . at least to me. I feel my role is not to sell but educate. Even if people cannot afford Rhoda Goldman Plaza, I am happy to refer to other communities and professionals that are more appropriate. This is also why I believe incentivizing sales staff with commissions should also be reconsidered. It only creates additional churn as highly frail people come into communities for months, not years, because they generate a commission.

Shifting Some of the Responsibility of Care Onto Referral and Placement Agencies

Stories of senior maltreatment are, unfortunately, hardly uncommon – including verifiable tales of abuse (physical, emotional, and financial) and neglect sometimes resulting in death.

However, these stories place the blame solely on the facility at which the events occurred, with no mention of how that senior came to be there in the first place. In many cases, it involved a family member relying on the purported expertise and knowledge of a professional agent working for a company whose business it is to securely place seniors.

Despite the fact many who run facilities or operate their own referral and placement agencies have voiced concerns about the lack of oversight, nothing was being done to rectify the situation until the Seattle Times ran the first of what would become a series of harrowing exposés from around the country regarding the situation (Seattle Times, “Hundreds of adult homes conceal abuse,” 9/2010).

The State of Washington Leads the Way to Regulating Referral Agencies

Following the revelations of blatant misconduct by facilities and referral and placement agencies in Washington State, the state’s legislature felt compelled to act, ultimately passing into law HB-1494, Concerning elder placement referrals (ELDER AND VULNERABLE ADULT PLACEMENT REFERRALS).

The Seattle Times described the action: “Washington will become the first state to clamp down on the unregulated, explosive growth of elder-care referral businesses that rake in profits, sometimes deceptively, by promising to help families find long-term care for the aged.” The article also stated that at least a dozen other states were now looking into devising their own legislation.

Particularly attention-grabbing of the subsequent articles and programs examining the state of referral and placement agencies and the overall condition of senior housing are the following three, including two newspaper accounts and a PBS series:

  • The Miami Herald, “Herald Investigation Exposes Problems at Assisted Living Facilities,” May 10, 2011
  • PBS Frontline ProPublica program, Life and Death in Assisted Living, which premiered July 30, 2013, and is available for viewing on the PBS website.
  • The Minnesota Star Tribune, 5-part series beginning 12/12/2017

Timeline of events regarding Regulation of Senior Referral and Placement Agencies

More States Follow Washington’s Lead

After Washington State passed HB-1494 on April 14, 2011, at least a dozen other states (including Texas and Arizona) expressed an interest in following suit.

Oregon was the first to do so with HB-2661, which became law on June 30, 2017. Oregon’s original bill was based, not on Washington’s law, but on the draft of a bill in California, SB-648, because of its strongly progressive tone.

For the record, in late 2016, SB-648 had passed both houses only to be vetoed by Governor Brown in December of that year, who claimed it was too costly to implement. In response, in February 2018 an amended bill titled AB-2744 was presented.

Less ambitious than SB-648 and more cost-effective, it still aims to require transparency and accountability on the part of the referral agency regarding both clients seeking placement and to the facilities as well.

But How Effective is the Legislation That’s Been Passed?

Passing a bill is often a frustrating and grueling process during which lobbyists and lawyers, paid to protect the interests of their clients (here the owners of some – but not all – referral and placement agencies) chip away at the bill, possibly gutting it. A Place for Mom, for example, has consistently voiced strenuous objections to being corralled by restrictions on how they do business.

To find out what those in the industry think about the Washington and Oregon bills, we contacted three insiders: Jamie Callahan, the founder and owner of a locally-based care and referral agency in Southern Oregon; Jennifer Cook-Buman, owner of, a senior housing referral agency; and Liz Fischer, owner of Right Fit Senior Living Solutions.

All three agreed that such laws are essential to protect vulnerable seniors and to promote accountability on the part of the referral and placement agencies. But how effective are the Oregon and Washington laws?

The Washington law lacks teeth and an ability to enforce. It hasn’t really done much of anything for Washington. The smaller businesses that operate in-person are made to abide, and my understanding is that the larger companies completely skirt the law by calling themselves a lead generator.

Laws need to exist in our industry for the sole purpose of regulating companies that can easily otherwise exploit seniors. These laws need to require conspicuous disclosures as well – which we did not do a good [job] of capturing with the Oregon law. Now that we are developing rules with DHS [Department of Human Services], we are realizing that things that should be disclosed will not be disclosed because the bill does not specifically call for it.

My feeling is that this is ridiculous… There’s a very good chance that companies will not be required to disclose ‘speed to lead’ or ‘ownership’ clauses. It is NOT in the best interest of consumers and this gets to the root of owning names, which interferes with a consumer’s right to choose who they work with based on interference by contracts that they are bound to that they NEVER agreed to, do not even know exist, and are not a party to. It is complicated, to say the least!- Jamie Callahan

I support the Oregon law, and hope that we will be able to fine-tune the intentions during the upcoming Rules Advisory Committee period. Much of it is left for interpretation as it is currently written, and having been intimately involved in getting it to this point, I am putting a lot of faith into the RAC process.

The Washington law is ineffective from my perspective. There are companies skirting the intention of the law. It has retrospective penalties rather than proactive guidelines to do business ethically. Without someone reporting them, there is no penalty, and when there is a penalty, it is beyond punitive – it is business-ending. Operating under threat of being caught is not good business practice in my world.- Jennifer Cook-Buman

I don’t know much about Washington laws. I do know in Oregon we proactively tried to get something submitted so we had input on what was important, as the Washington bill was ‘forced’ on them and isn’t good (no enforcement mechanism).  I totally support the Oregon laws.- Liz Fischer

Arizona’s regulation takes effect:  HB-2529

For an assessment of Arizona’s HB-2529, passed on May 13, 2018, we were referred to David Johnson, Executive Director, National Placement & Referral Alliance. HB-2529 is considerably briefer than the Washington and Oregon bills, but David opined that it “is a significant reform that will protect Arizona’s seniors. The bill brings sunshine to an otherwise hidden process that can mislead seniors into thinking a referral agency is working only in their best interest to help find the best assisted living facility for that person.” He further stated:

Rather than creating a regulatory bureaucracy as other states have done, HB-2529 simply requires a referral agency to tell the customer or the customer’s representative prior to making a referral that the agency is paid a fee by the assisted living facility for the referral, and to disclose the existence of any business relationship that may create a conflict of interest (such as the agency is part owner of the facility referred to).

Once that customer becomes a resident at an assisted living facility due to such a referral, the referral agency must close the loop with its customer by sending a second disclosure of the amount of the fee paid or a good faith estimate of the fee to be paid. These disclosures must be acknowledged by the resident or their representative, and provided to the assisted living facility to be kept on file.

The bill allows for enforcement of these provisions by the Attorney General or the County Attorney, with up to a $1,000 civil penalty per violation. This bill creates consumer protections for some of Arizona’s most vulnerable residents – we strongly encourage support of HB-2529 on final read.

What Would the “Ideal” Senior Care and Referral Agency Law Contain?

What follows is a summary of the points Ms. Callahan, Ms. Cook-Buman, and Ms. Fischer regarded as key to the phrasing of an effective law for regulating referral and placement agencies. This list, covering a multitude of issues, suggests how difficult it would be to achieve the ideal, particularly when not everyone involved is in favor of putting seniors first. Anyone conferring with an agency representative would do well to have this list at hand.

  • Utter transparency as to:
    • How the agency is paid
    • How much the agency is paid
    • Who pays the agency (the potential resident or the facility where they are placed)
    • Whether or not the agency will refer potential residents only to facilities with whom the agency has a contract
    • Whether the agency has inspected the facilities on their books, and how often, giving specific dates and findings
    • That the agency will send a representative to first interview the client, preferably in their home or rehab setting, to build a profile about that client’s medical and personal history to help them find the most suitable facility
    • Whether the agent is paid a flat fee for their work, or receives a commission based on the amount the client will be paying the facility monthly
    • That an agent of the agency will accompany the potential resident (and any family or friends who wish to go along) on a tour of the facility and assist in interviewing the facility director and other staff
    • What their “speed to lead” policy is. (This phrase, common to many industries, refers to the rapidity of the response time to a potential lead. When a potential resident shares information with a referral agency, how quickly does a representative of that agency respond?)
    • What their “ownership” clause is. That is, when a client contacts an agency and supplies their contact information, the agency should be required to make it clear how they will use that information, as well as informing the client that, by sharing that information, a contract has been invoked, and the precise nature of that contract. (These “contracts,” which all too often are not verbalized by the agency and to which the client did not specifically agree to, have traditionally been used by some referral agencies to interfere with the client’s attempts to engage the services of a second referral agency; in effect, the agency is claiming “ownership” of you, your name and other personal information, which they may share indiscriminately.)

What Can We Take Away from All This?

The current laws drafted to enforce good faith dealing on the part of referral and placement agencies may not be all they could be, and are certainly too few, but each is a step in the right direction.

We all have a stake in this issue, whether for ourselves or for those we care about. Don’t put off contacting your senators and representatives if you are interested in seeing legislation in your state; the more people who do that, the more likely, and quickly, new laws will be drafted and those already in existence could be improved and strengthened.

In the meantime, be careful who you turn to for assistance, though remember: There are MANY good folks out there. Regardless, when it comes to asking for that assistance, go armed with all the information possible, and never hesitate to ask questions.

Written By
Amie Clark

Amie has been writing about senior care products and services for the last decade. She is particularly passionate about new technologies that help improve the quality of life for seniors and their families. Seeing her parents and grandparents age made Amie ask herself, “Would this be good enough for my loved ones?” In her spare time, Amie enjoys outdoor adventures and spontaneous road trips. Learn more about Amie here


  1. Fees should be regulated. It’s merely paying for exchange of information, and the small carehomes can’t ever get ahead. It is a challenging but rewarding business, but we shouldn’t be bled dry by these agencies, especially because it’s a cartel involving case managers and placement agencies. Someone please do something, because it’s absurd.
  2. Selecting the right location varies from case to case, which is why we give each of our clients the personalized attention, hospice care that they deserve when it comes to finding the right place for their loved ones.
  3. I am just a six bed falicity for fifteem years, I always get referrals from the diversition programe, The placements agencies, case managers, social worker, nurses, doctors and any body else is selling the residents, so there is no way we can stay full, they have put a pin in owr wheel, most of my friends who owns small falicitys have close down, because we cant afford to pay such a high price for a residents, and after three months the agency comes back and take the resident to sell to another falicity. I am so glad i found this site.
  4. For credibility, let me say that I am an administrator, co-owner/operator of three Board and Care facilities in Southern California (Sarah’s Assisted Living); so I have a lot to say about this topic.   First – the referral part of the industry, has a lot of political muscle behind it from big agencies and I am against over regulations and regulating when self-regulating is best.  There is a reason why no regulations has been put in place, the problem is not big enough.   Solution – allow the market to self regulate.  Bad referral agencies will be discovered easily by providers.  Availability of technology and information readily available on-line will smooth out these problems.  Providers have to do a better job in marketing themselves.  They are the true victims here, as described by some of the other comments – not disclosing all information to to families and providers.   Thomas  
  5. First of all, I feel very bad for your father! Second we need to clarify that it’s called a community and not a facility. A facility is where you have skilled services like a skilled nursing facility. If anyone is ever placed by APFM The community has to be licensed and reviewed every three months to make sure they do not have major violations that would appear as abuse! APFM takes pride in communicating with all of their communities! The other point that needs to be made is that most of the comments have been one-sided. These are all businesses just like corporate businesses and the reason they got into it was of course compassion towards seniors but also because there is profit to be made and it should be because this is the United States of America and people that do business need to make money to survive! Also if your family cannot afford to chip in the money necessary to keep your family member close to where you live then you need to go outside of that area and you need to find a place that’s more suitable and more functional and more affordable! And that’s the great thing about these larger agencies because they can find that and they can find that very quickly for families! As for regulation I’m sure it will eventually happen but for those of you out there that are blatantly pointing the finger at the larger agencies it’s just not fair! One thing I do know about the larger agencies that they’re not getting paid under the table and taking cash because you will get fired if that is found out!
  6. What these laws should concentrate on is HIPPA. HIPPA laws are being broken every day in the process of placing a resident to a facility. First, the social worker, case manager, nurse etc calls their preferred placement agency ( that pays them under the table for the referral) and gives them all sorts of medical information on the potential client (HIPPA). Then the agent places the patient into a facility, charges a huge amount of money ( usually the first month worth of rent, most of the time they only take cash so they avoid taxes). After the resident spends few months at that particular facility, the agent will try to move the resident to a different place ( double dipping). The facilities are the ones that make the biggest investment into this entire process: facilities are regulated by the State, facilities pay the referral fee, all the expenses related to the resident: caregiver wages, supplies, groceries etc. A lot of caregivers will only accept cash as a form of payment because they know there is a shortage of workers out there. Most agents I know make a killing from these placements ( apx 50k a month!! Outrageous) for doing almost nothing. Our lawmakers should fix the entire process. It is not as hard as they say: hospitals, rehab centers, nursing institutions should contact the group homes directly, bypass the placement agencies, so the group homes can invest those referral fees into the care of the actual resident. There are so many flaws in this entire system that I feel disgusted to be part of it
  7. I’m so glad I found this site! I own multiple group homes in AZ and runs it for 17 years. Our mercy finding clients is a referral agency, there are some honest senior advisors and lots of them are too greedy. Arizona new reg for referral agencies not really being followed, why I said that because when I ask for a signed disclosure from there client, no clue at all. Sometimes they come to your door the next day after placing the client. I’m hoping that hospitals and rehab will make sure that the placement of the patient that they are discharging will be going to the right place that can provide the services to the patient, otherwise will come back to the emergency room. I feel sorry for the Senior and family that struggling budget to find placement for their loved ones because the first 3 months of the rent goes to the referral agency, we have to charge more because we need to compensate our employees and other expenses related to the operation. I’m hoping the hospital allows group homeowners to do marketing directly to them. This will help a lot the family reducing the cost of finding a group home for their loved one.
  8. I own and operate a Senior Referral Service. I am in total support of sensible regulations on my business. My hope is that it will weed out the predators and vultures in business for the wrong reasons. As advisors to seniors and their families we always explain how we are paid, what the process is, and follow through with personalized tours. We never make a referral to a facility without permission of our clients and we always perform a basic needs assessment so our referrals are meaningful to both the family and the assisted living. We always provide options to our clients as it is their decision, not ours. We advise on care needs, budget, and personal preferences. We always disclose any recent non-compliance activity of a facility. We only recommend places we have toured and stay in regular contact with all of our community partners. We assist in gathering necessary documentation for admission. We check in with the family once the senior is settled to make sure needs have been met appropriately. We are not all villains. This service is of great value and we should be compensated accordingly. However, never should we become a part of the problem in the big business of senior care. I say demand better experiences for those searching for senior care. Bring on reasonable and transparent policies for those who act as trusted placement advisors to seniors.
  9. Consumers need to be aware. There is never a free lunch. Its the piranhas on a feeding frenzy of an aging population and an ill informed busy culture that would rather trust blindly for the care of their loved ones than step up like the rest of the world does or apply common sense. How can agencies such as a Place for Mom afford all their advertising? Why are they in business? How are they paid? Likely many senior lawyers on the take too!
  10. So, there needs to be a limit of how much the referral company like A Place For Mom, they currently charge 98% of the first months rent. On a respite, they charge 60% of our fee to the resident, which we can’t even pay for the respite care for that fee. We go in the red for those fees. Plus, they own that referral for 2 years, which is BS. The families have no idea what they got themselves into, until A Place For Mom post their information to a wide circle of 25-50 miles around the families ideal location. Which is waste of time for the senior living communities and the families. Cause in a population city like New York or Philadelphia or Miami your going to over 150 senior living communities calling, emailing that family. The first couple of calls to the family, they are good, but by the 10, 20, or more the families start to telling the senior living communities to STOP CALLING. Who’s fault is that, A PLACE FOR MOM and CARING.COM. Cause they are only thinking of the ALMIGHTY DOLLAR. All senior living communities have a saying about APFM Eldercare Advisories and The just throw shit (referral) on the wall to every community, hopefully it stick to something (senior living community). Example. Fred 80y/o and needs Assisted Living, the family max budget for him is $2,500. Family wants to stick to Queens, New York. So, APFM throws out this referral to all of the communities within a 50 mile radius and puts down that they have a $5,000, cause the Eldercare felt they had more assets then they told them. Fred’s family is getting calls from as far away as Bucks County, Pennsylvania or West Long Beach, New Jersey or New Haven, Connecticut. Family gets frustrated from this service and tells A Place For Mom to take them off their list. A Place For Mom canes back to the communities and says the family of Fred has decided to keep him at home, but if he reaches back out to you let the Eldercare Advisor know (he/she wants their 98% fee). So, Fred’s family goes and does their own research and after a year, they find their ideal place for Fred. The Relationship Director at the Assisted Living has put in a ton of hours with the family and has build this relationship with trust and honesty. Fred moves in, every so often the Eldercare Advisor from A Place For Mom calls Fred’s family. Fred’s family feels this Advisor is to aggressive with the family and tells her/him to stop calling. So, now the Eldercare Advisor turns her/his attention to bugging the Assisted Living communities within 50 miles of were APFM refers to over year ago, even though they have had no contact with the family. This is how these referral companies work. More laws are needed on both sides.
  11. I agree regulations like this need to be in place.I’d be so happy to have a bill like this in Georgia. I opened a Personal Care Home in Atlanta and the referral agencies send residence to locations they know nothing about and aren’t try to find out anything other than basic information. This does nothing to find the residents a proper fit. I do my best to provide the best service, best comfort and quality of care for each resident as we are a family and this my responsible! I provide them with twenty four hours of care. The referral agencies like a place for mom see nothing but huge profits which should be disclosed. They are not responsible for anything but billing and locating. We do this to take care of people make money is secondary? Anyone in this line of work knows the reward is in helping those that need help!
  12. Really, really appreciate this article. I’m primary caregiver for Mom (Alzheimer’s) and member of my FIL’s care team (Lewy Body Dementia). We’ve walked the road simultaneously and were scarred by the experience of finding the right living and care situations for them. For many of the reasons you cite here. So scarred, that we changed careers and are on a mission to change it. 🙂
  13. As the owner of a local senior placement agency in Central Florida, sadly I have to agree with some of the comments made in this blog. I do everything I can to work ethically and not only “place” people into a community but also make sure it’s an appropriate facility for them. I’ve had more and more new competition enter the field and not only focus on their own pockets but also move seniors into unlicensed facilities, inappropriate facilities, or move people into the most expensive facilities in order to put money in their own pocket. I’ve worked hard at my reputation. I am trained, understand ALF and dementia memory cares communities. I tour all facilities prior to contracting with them, and also know our state laws. I do what I can to save my clients money! I am all about the senior and my reputation. I want the senior in a safe place for as long as they are appropriate to live there… hopefully, long-term. I am okay with being regulated. We should be certified too! There is a way to conduct business….
  14. I’m glad I found this site. I have had some amazing insights regarding facilities due to my elderly dad. Oversight in this area is good re: placement folks, however, even when you find a home that you like when you start out, it changes with time. The turnover in this industry of “caregivers” moving from home to home is staggering! Abusing elderly in one home before moving on to another. I see a fundamental breakdown in the industry! many people are coming from other countries to Washington State to do the jobs that Americans don’t want. In Washington State many are from Africa. As with all people, some are wonderful and others are motivated by greed. A friend of mine from Africa who is a wonderful lady mentioned to me that many that come here are “greedy and think only about the money.” What is earned here goes a tremendous distance in any impoverished country. She also said, “if it’s not in your heart to care about others, don’t be in this business.” I couldn’t agree more! The difficulty is how does the state “qualify” those getting in the industry and their motivation?? this applies to ALL getting in any industry pertaining to elderly. When I moved dad into an AFH on Mercer Island on [name redacted by admin] St. the original owners sold their business and things got worse (this is the turnover I mentioned!) The new “caregiver via new owners was always cleaning the house when I came into the home. She payed so little attention to the residents beyond the basic necessities, it was heartbreaking. With this attitude, you don’t get quality “caregiving.” Yes, a home should be clean, that goes without saying. But when that is put above the interaction with the residents, it’s incredibly dismal. Getting to know [name redacted by admin] a little I could see that she had no real interest in communicating with dad or any other resident! She began scolding him! In a different home in Mountlake Terrace, [name redacted by admin] he started under the original owner [name redacted by admin] and then she let her mother take over! It went from bad to worse!!! dad reported a man who “shook him by his hand” while in the bathroom. He was soooo nervous! Even with dementia-he was able to communicate this treatment. Ultimately, [name redacted by admin] told me she was there often between this home and the [name redacted by admin] AFH. It was only to drop groceries and that’s it! When her mother took over to relieve the mean guy [name redacted by admin], [name redacted by admin] was awful. Her mother sent my dad out for an outing with soiled clothing and that combined with not really liking him! When I complained to [name redacted by admin] that dad had lost weight 13lbs and [name redacted by admin] was only giving him a salad an an egg for breakfast [name redacted by admin] blew a gasset and began yelling at me! Family have rights with the state as well. Don’t send your loved one to these places! [name redacted by admin] is totally devoid of showing “care” for the people moving into that home. One of her good caregivers [name redacted by admin], was told NOT to talk to the residents. He reported this to the owner and he decided he would continue speaking with the residents. He said, “she is cold.” He wanted out! One of the keys to this industry is to be able to “qualify” those who are in it for the money, hopes of opening their own AFH because it is extremely lucrative. Mass money is being accumulated by the providers, they pay the workers very little and many don’t do good work. They take an “I don’t care attitude” because they work hard for little money. There are a few AFH’s that pay their workers a good, living wage. Those homes are Extremely successful! [name redacted by admin], in Shoreline, Wa (north Shoreline) has a well run business (private pay only) and can afford to pay more to his workers and they do great work. Many homes are private pay and they don’t pay the workers well!! This is NOT an incentive to get the quality work necessary for such a difficult job as “care-giving”. For people who want to survive in an expensive world, it’s not wrong to want a living wage. These caregiver’s often have 2 jobs and “burnout”. I took care of my dad full-time for 4 months living in my home. I know what it takes and it’s extremely hard work!!!! People making 10-12 dollars an hour is LOW for looking after the life and well-being of our loved ones!!!!
    1. Martha, I’m sorry that you had such a bad experience with trying to find a good place for your dad. I own an Adult Family Home in Bellevue Washington, and I agree with this article and unfortunately I can see how things like what you went through can and do happen. I get really angry, frustrated, sad and disappointed when I hear bad things happen in adult family homes and in any elder care facility really. It makes me angry because it makes a bad name for those of us that try really hard to take care of these people that are one the most vulnerable groups of people out there. I know it’s a hard job, but if it’s not for you, don’t apply. Don’t work in this field. There are even good people that this job is not for them. It takes a lot of patience and understanding. People with Dementia or alzheimer’s may have mood swings, may hit their caregivers, they can be messy, resistive to care, etc. But they don’t always understand what they are doing. A lot of times when they hit or are mean, it could be that they are in pain themselves and don’t know how to communicate that. There are good places too though. Some places like ours really emphasize on quality of life VS making it easier for the caregivers. But not to dismiss the caregivers either. If a provider treats their caregivers well, then they will in turn treat the residents well. At least that is our thought process. At our home we have 2 caregivers during the day for the first half of the week (12 hour shifts) and another 2 during the second half of the week. That way no one gets burned out. We also have an awake night staff that helps with some of the morning and evening duties. Also lightening the load for the day shift. Basically trying to spread out the work evenly. And this is for a maximum of 6 residents. Plus my wife and I (the providers) live on site and are heavily involved. We talk to the nurses and doctors. Update family members, even take them to their appointments if need be. And all of the other million little things that needs to be done behind the scenes. Our motto is that we will be older one day and if we are lucky enough to live to that age where we need help, we would want someone to take care of us the same way we are taking care of our current residents. We also do work with referral agents. And have got to know some of the good ones and some of the bad ones. Had a really bad experience once with an agent that worked for one of the bigger agencies here in Washington. Long story short, she brought a family to tour our home, but I think she didn’t expect the family to choose us or something because she asked us to move the resident to a different place after the family chose us and was moved to our place. We eventually gave in because she told someone we know that if we don’t move her within the next couple of days she would black list us at her company. Write a note saying we are not able to take care of residents. And this was when we first opened our home. We have also met some awesome referral agents that really take their time to talk to their families and explain their options. And do it to actually help people. All referral agents get paid for their services. But some mislead their clients by telling them that “it’s a free service to them”. Which it is. But the adult family home is the one that pays the referral agent. Usually it’s 100% of the 1st months bill. Some do a little more and some a little less. But the most common is 100%. If the resident passes away after 3 months let’s say, you basically worked for free for one of those 2 months. And still have to pay your caregivers.
  15. *The Senior List was asked to submit this comment on the behalf of Susan W.

    “I couldn’t agree more that referral agencies – like a Place for Mom, with which I’m too familiar – need to be held accountable, and so do senior care facilities. Those who need the help of referral agencies are completely at their mercy. For my family, it all started when my very fragile 88-year-old father, back in 2011, called me at one in the morning, New Year’s Day, telling me he was unable to move. I got him in to the hospital but, after about three weeks, he needed to move to a long-term care facility. That’s when I called a Place for Mom. The agent I worked with made feel me that these people knew what they were doing, that they cared, and that we could trust them. No one told me that the agency would be paid a month’s rent by the facility; plainly, APFM focused on their paycheck and NOT my father’s welfare.

    After moving Dad into an Emeritus facility, as APFM recommended, here are just some of the things we had to deal with:

    -Previous resident’s prescriptions still in bathroom

    -Lack of proper maintenance caused major flooding in his bathroom and entire wing of second floor

    -Emergency pull cords in bathroom and next to bed not functioning (Bedroom one fell off the wall)

    -Shelf in closet not attached to wall, fell on his head

    -HVAC broken entire time he was there. Could not control oppressive heat other than open windows in winter!

    -No grab bars outside shower, only inside, which led to him falling and breaking several ribs. The staff then lied about having checked up on him!

    -Maryland state regulations (advocating for resident) are meaningless when facility contract overrides the state and allows facility to evict resident for no reason.

    After months of failed promises from Emeritus and a refusal on the part of both the facility and the referral agency to accept responsibility and make good those promises, my father suffered deeply, physically and emotionally. I suffered, fearing for him and not able to simply move him to another facility. Because of his experience, I spent three exhausting years working with government officials and politicians in Maryland to effect change, TO NO AVAIL. Until stringent laws and guidelines replace the efforts of the long-term care industry lobbyists and lawyers, no one will be safe. This could be the future for any one of us. Contact your senators and representatives, demanding reform.” -Submitted on behalf of Susan W.

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